Well I am feeling a lot better. The pain in my joints has all but gone away, although I am not sure why. At first I thought that it was the Imuran, but I’ve been doing a little reading up on the drug and it should take a number of weeks before the benefits are felt. I am also concerned because it turns out that Imuran increases your risk of skin and other cancers, something I really don’t want! Sarcoid is bad, but cancer is MUCH WORSE!So the question is, if the Imuran isn’t really providing any benefit yet, and if I am doing better this week than last week do I really need to be on the Imuran? (Especially with the increased risks of cancer)
I am also concerned that Imuran gets down into your DNA. I haven’t been able to find anything on how permanent this is. If I stop taking Imuran does my increased risk for cancer go away? I’ll have to find out more information. I don’t want to trade Sarcoid for cancer!
Have to figure this one out.
Michael
3 comments:
I just found your blog. I don't have what you have, but I am beginning Imuran tomorrow. I have something called Boop. Are you still on the Imuran and did you have any side effects? Your the first person I've found taking this drug and I'm really curios. I've only met one other person with BOOP face to face.
I really haven’t noticed any side effects to speak of except I have noticed… how do I say this…. It has been very easy to go to the bathroom. Nothing I can manage though. The only thing that bothers me at all is my worries about skin cancer. I still don’t have a clear understanding about how much higher my risk is, but I do everything I can to stay out of the sun as much as I can. They advise using sunscreen and I found some clear 70 SPF at the store. Seems to work well for me, you should try it out.
From what I can read online it looks like Boop can effect your lungs and how you breath. I hope all is going well for you and that you get a resolution soon.
Good Luck and hang in there! =)
Michael
Thanks! You inspired me to start my own blog. I'm hoping to find others out there that have BOOP. Good luck to you too!
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