Amazing! Better than ever!

Amazing! I am doing better than ever! The redness and swelling has completely gone away. My legs are the same as when I was twenty five and I haven’t used the compression socks for months! I was feeling it in my lungs quite a bit, but even that has gotten much better. (Still there a bit but doing great!) I feel very blessed and grateful.

This holiday season has been one of the most... meaningful of my life.

Nothing to do now but keep going, eat good (especially after the holidays), exercise and enjoy this reprieve that I have been experiencing. Here’s hoping for the future.

Michael

Ps. My sister, who also has Sarcoidosis is doing much better as well. She has lost a ton of weight and is down to 5 milligrams of Prednisone and looking to go to 2! She has had Sarcoid longer than me but most of that time was untreated. She has taken a slightly different treatment path, primarily just Prednisone, but it has worked for her. Just goes to show that different people react differently to different treatments, the key is to just never give up!

Good luck sis!

Sometimes you have to go down to go up

Well… the effects of the Imuran finally ran out, and while I was on a business trip too. My leg began swelling and getting really stiff. The red lumps (for lack of a better term) began migrating toward my ankle. I was very concerned that the inflammation would again impact my joint and I would lose the ability to walk freely. If this were to happen I would have to go on a high dose of Prednisone with all of the strong side effects. The timing for this couldn’t be worse. Things are changing at work and I am applying for a position. I certainly couldn’t afford to be dealing with “Prednisone Rage” during this process.

I went and saw the doctor when I get back from the trip and explained the situation. He talked over the situation with me and then switched out my 5 mgs Prednisone with 4 mgs Methylprednisolone. He gave me a shot for a boost to get the swelling under control and told me to get some compression socks.

It has been two weeks since the change and I am in better condition now than I have ever been since the Sarcoid started! The medication appears to be working very well, and the compression socks appear to be doing the trick. I have been eating better and have lost about 15 lbs and feel really good. I have to wait and see if the shot is still in my system, but I don’t think so. If this keeps up I might even be able to kick this thing before too long. Needless to say I am very excited.

Here’s looking to the future.